9 January 2012: This blog post has been included in RA Warrior’s blog carnival on pain scales. While my entry is a bit on the irreverent side, check out some of the other entries for more thoughtful perspectives on tracking, quantifying, and communicating pain. Thanks for including my post Kelly!
I’ve been thinking a lot lately about how easy it is for a continuous level of pain to become the “new normal”— like when your pain is at a “5” consistently, that becomes your baseline and you forget what a “0” or a “1” felt like before you were in pain all the time.
For the last few years, my feet have been the bellwether of my arthritis. When I’m feeling good, my feet feel pretty good. When a flare is bearing down on me, my feet are the first to respond. Last week, I tried (and failed) to put on a cute pair of sandals to go out and realized I’d gone a month without wearing heels.
Since the standard pain chart is woefully inadequate (as outlined hilariously over at Hyperbole and a Half), I decided to make one of my own: a shoe shorthand for my pain levels. Note that these are shoes for my professional life, not necessarily what I’d be wearing if my day involved reading, writing, and picking up some groceries (that’s what slipper socks and Uggs are for, right?). So if you catch me at work in a pair of sneakers, it might not be the best time to ask for that extra favor…
Pain Level: 0
Pain? What Pain? I feel awesome today!
Pain Level: 4
You’ve got to be kidding me if you think I’m putting these swollen toes into a pair of heels.
Pain Level: 8
Don’t even ask, or I might have to tell you about how it feels like someone
has shattered all the bones in my feet with a hammer. Literally.